What Love We Have Been Shown!

Family and friends-

Our little Annalise Hope is 6 weeks old today!!!! I really cannot believe this. Wasn’t it just the other day that I was at the hospital, getting my spinal tap put in to see our little girl for the first time? Was it really 6 weeks ago that our lives changed for the better? Six weeks from the time we thought we would be saying “see you again” to our firstborn

Boy have things changed! And let me tell you, I couldn’t be happier!

Annalise is still doing great! We are 8 days post surgery and are so thankful for the changes we have seen in her. We are so excited to see if changes keep happening as she gets older and to see what all she can conquer with time!

As of yesterday (the 30th), her vitals are still strong, her lungs are clear, and her head circumference has gone down in size pretty significantly. Before surgery, her HC was 56 cm. Yesterday it was down to 47 cm!!!! A factor for the decrease (other than the fluid being gone) is that her skull shifts now. Because the fluid pushed her skull so far out, it’s going to take longer than normal for her skull to fuse together. So right now, she has a misshapen head that is easily movable.

The other huge change is her weight! The day after surgery she weighed 9lbs 7oz. Yesterday (using a different scale than normal which could alter the validity) she only weighed 6lbs! That loss is all the weight from the fluid!!! We know this because she has gotten chubbier, is finally out of preemie clothes (definitely a sad moment taking her preemie clothes out of the dresser and storing them away), and she’s still eating perfectly fine! It’s crazy to think her head had about 3 POUNDS of fluid in it! 😳

We are so in love with all the different facial features she makes and how alert and happy she is! Now, before surgery she was always content and happy as well but it’s just so reassuring seeing her happy post surgery.

Next week is when we go back for her checkup/follow up with the neurosurgeon and her pediatrician. This is when she will get her stitches taken out as well! Hopefully everything checks out at these appointments!

Those are the only updates on our little sweetie since last time! Everyday is about the same with her and we are so grateful for that! She continues to amaze us with how well she is doing and how much change is taking place! (Even her body temperature is doing so much better! She is usually always wearing a onsie and a sleeper but she hasn’t even worn a hat in a while here at home! When we brought her home from the hospital, she was always in 4 layers so we have definitely progressed since then!)

Now for your viewing pleasure… Here are some updated photos of little miss:
If you saw the picture of Annalise in her little sweater dress above and thought it was adorable…. Wait until you see her in her Easter dress!!! 😍

I’m so excited that she gets to celebrate her first Easter with us and our church family! It’s a beautiful holiday that means so much to us.

The only thing I can say is:
What love we have been shown!

That statement holds true for so many different reasons for me. Most importantly it’s about Jesus’s love for us. Jesus dying on the cross for our sins is something I will forever be grateful for and will never forget. Another reason this statement holds true is clearly regarding Annalise Hope. We have been shown so much love by having her in our lives. Doctors told us she wouldn’t be apart of our lives for more than an hour and here she is, 6 weeks later. God has shown us so much by giving her to us. Not only that but the love we have gotten from family and friends is incredible! She has brought us a love that one cannot even begin to describe until you go through it yourself. It’s a beautiful thing and I am so incredibly honored to have this special girl in my life.

Anyways… I hope y’all have a wonderful Easter! Remember to celebrate that you are free because of Him!

Love you all!

(www.gofundme.com/hopeforannalise)

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31 comments

  1. Kerrie Marquart · March 31, 2015

    Beautiful, what a blessing!

    Like

  2. Dina Kapernekas · March 31, 2015

    Hello. So glad her shunt surgery went well. We have lived a similar story to you. Call me some time at 312-617-6915. The story of my daughter Zoe is on caringbridge. Our site name is dinakapernekas

    Like

  3. Kriss · March 31, 2015

    I’m so happy you updated. Brought happy tears to my eyes as soon as I saw her precious pictures. Her little face has just captured me and I rejoice in Gods goodness. I pray for her daily. -Kriss

    Like

  4. Rio Smith · March 31, 2015

    I just found your website today. This blog post is all I’ve read so far, but I will be following your family. Annalise is sweet perfection. I’m glad her surgery has proven fruitful. You guys are amazing parents and have a beautiful blessing in your hands. God bless!

    Like

  5. Kim · April 1, 2015

    3 pounds! Oh she must feel so much better now!! Praise the Lord! I love that photo of her with her hand on her chin. She looks deep in thought.

    Like

  6. Amanda Kramer · April 1, 2015

    I was one of the honored and blessed nurses that had the opportunity to care for you both during your stay at the hospital after delivery. Your sweet family has crossed my mind many times since I have cared for you. This wonderful news has brought me to tears and sweet little Annalise is just as beautiful and precious as the day I cared for her. My continued prayers for her healing. May The Lord continue to bless you and your whole sweet family. I look forward to continued updates.
    Amanda Kramer

    Like

  7. Dawn McMannama · April 1, 2015

    This is an amazing story to watch.

    Like

  8. larisha · April 1, 2015

    so happy for you guys that is doing so well and she is soooooooooooo cute and a little body and she is growing so good keep me posted how she is doing and have a wonderful easter

    Like

  9. dawn knox · April 1, 2015

    Praise God. and Thank you for the update. I will love seeing how far she heals.

    Like

  10. Allison · April 1, 2015

    This is just amazing news! I have tears of joy! I am a firm believer in miracles and you certainly have one. I witnessed and prayed for a miracle for my daughter who was born at 27 weeks & in the NICU at Overland Park for the first 5 months and on oxygen until her 3rd birthday. We thought she had hydrocephalus also but thankfully it corrected itself. Your daughter is absolutely beautiful and her spirit and smile is amazing. I’m so glad you chose to have the shunt placed. Cannot wait to see her Easter dress!

    Like

  11. Debbie Riley · April 1, 2015

    You have a perfect gift from God! We have one, too! Our Jonah, who is my grandson was given 0 % chance to live. He is now 5 and doing things that he was never supposed to do. He has limited abilities, but he knows us and I believe he knows how loved he is! AND, I have claimed your precious little Annaliese as his girlfriend! 🙂 Keeping you all in our prayers! Love from Rural Retreat, Va Debbie Riley

    Like

  12. susanmsj · April 1, 2015

    I am glad your precious baby is doing so well. She is so sweet. Thank you for sharing your journey with us.

    Like

  13. Robin · April 1, 2015

    Just an encouraging word to you…my best friend’s little boy had the same diagnosis as your sweet baby and was given the same prognosis. He is now a happy, smart, walking 4 year old! He had a shunt at 2 weeks old. His parents are believers, and our entire community prayed for a miracle! He is a miracle, and he baffles his neurosurgeon and all those who read his MRI. Our God is good and merciful, and it is no doubt He is using you and Annalise to glorify Him!! Bless you!!

    Like

  14. dannetteteaches · April 1, 2015

    What an amazing update! She is such a little warrior princess. Prayers continue for your sweet girl and you guys. It is amazing what love can do!

    Like

  15. Jennifer · April 1, 2015

    I just love her!! She is just the most precious little blessing. I cant get over how big her eyes look ❤ and she looks so happy. I recently was blessed with my 3rd little one and my favorite look was that oh so sleepy look with the wrinkled forehead and when I saw those little wrinkles on her forehead after surgery it made my heart just so happy. I love that you all are getting to experience those amazing moments with her.You have also touched my life. My son has reflux to the point of stopping breathing sometimes and I was terrified…all the time! I had stopped sleeping and even while he's now on a monitor and doing so much better I just couldnt get over my fears, but then I read what you said about god knowing how many days we have and you have so much faith. In the face of what you have gone through, so much faith! Its beautiful and wonderful and amazing! You have reminded me to work on my faith. Silly me to worry so much when we have such an amazing father watching over us. My family & I will continue to pray for you. Please give that sweet girl of yours a little hug from us.

    Like

  16. Ruth Quiring · April 1, 2015

    So wonderful. Such a beautiful little girl. Will keep praying and thinking of you all.

    Like

  17. calsunflower2014 · April 1, 2015

    How wonderful!

    Like

  18. Jean · April 1, 2015

    I was driving home from work the other day and started thinking about y’all and said a quick prayer for Annalise and her continued health and development. Thank you so much for sharing your pictures of your precious little girl! Happy Easter!

    Like

  19. Angie · April 1, 2015

    Thank you so much for sharing this beautiful life with us. You are truly blessed.

    Like

  20. Kristi A. Ferguson Ruge · April 1, 2015

    Thank you for sharing your precious, beautiful Annalise Hope with all of us. She is, indeed, the epitome of “Hope”! Continued prayers for her…and all of you! Happy Easter 🙂

    Like

  21. RecoveringAddict · April 1, 2015

    Wow. You’ll are blessed! Have a love filled Easter. Can’t wait to see the dress 🙂

    Like

  22. Wendy · April 1, 2015

    What a precious little dolly girl you have there. 3#’s of water so far, that is amazing. I can see the change in her head size from the photo’s… So glad I happened upon your site. You are so blessed.

    Like

  23. halley · April 1, 2015

    I am so in love with her perfect little face!!! Happy Easter Annalise!

    Like

  24. lauren · April 1, 2015

    So glad to see the surgery went well. I hope you guys have a wonderful Easter together and thank you so much for sharing your updates about your sweet girl!

    Like

  25. Gina · April 1, 2015

    She’s beautiful! Can’t wait to see the Easter dress!

    Like

  26. Jennifer lutterman · April 2, 2015

    I want you to know I can see the journey God has you on! Awesome! You are warriorers for this darling little girl! I only wish I could share that love with you all. I love all your love and her love returned! Amen

    Like

  27. Stephanie Ostrander · April 2, 2015

    I had the honor of doing Annalise’s first weight check in the pediatric office. What an amazing journey you have had since that time! God blessed Annalise by giving her parents so willing to do what ever it takes to give her the best possible life. You are an amazing family! I’m so glad to have found this sight to be able to keep up with baby Annalise. Best wishes for a wonderful Easter.

    Stephanie Ostrander

    Like

  28. anonda · April 2, 2015

    Awe! She’s such a fighter and an adorable one! Thanks for the update!

    Like

  29. Jenny White · April 2, 2015

    Happy Easter! I saw your story on facebook, and I just love seeing updates on your precious baby girl. Many prayers for all of you:) God is amazing!

    Like

  30. kayloudee · April 4, 2015

    This made me cry with happiness, shes so beautiful and perfect 🙂 congratulations! x

    Like

  31. Tammie · April 4, 2015

    She is beautiful. My thoughts and prayers are with your family

    Like

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