Well family and friends… it is about time to update y’all again! 😉
Last Sunday, we took our little one to her FIRST church service! It was the first time getting out of the house (besides doctor visits). She absolutely LOVED listening to the worship music! And despite our pastor saying he puts babies to sleep when he preaches, she stayed awake and attentive the whole time. 😉
Annalise is still doing so well! As of yesterday (the 11th), she is now an 8lb 7oz baby! She is finally gaining weight at a good rate! 🙂 Now, we don’t really know how much of that weight gain is just from her head… BUT! Her cheeks are definitely getting fuller so we know some of it is going to her body. Her vitals are still going strong, lungs still sound clear, and she is still eating and breathing on her own! Annalise still shows no signs of pain or discomfort and is still our super happy, smiley, funny baby!
This week has been such a beautiful week of weather that the last couple days, I have been taking Annalise outside for small amounts of time. The first day we sat out on our patio, she loved listening to the birds chirping. This was her facial expression the entire time we were outside:
Yesterday, when we were sitting outside, she was just so bright eyed and awake…. listening to the birds and the kids playing hide and seek. I think she likes being outside! 😉
We even took a nap on the couch next to the open window yesterday. And when we woke up, she was so happy. Just look at these “selfies” I got with her! (Don’t mind my “new sleepy mom” look!)
So, this past week has been a very good week for us. The only other major thing that happened this past week is that we finally have come to our decision!
So the answer you guys have all been waiting for is finally here!
Annalise Hope is going to Children’s Mercy tomorrow (the 13th) to get an MRI done. This will tell us just how much brain she does have and will allow the doctors to see where in the brain they should put the shunt. Yes, I said it. We are going forth with the surgery and going to have the shunt put in.
Although putting my precious baby girl through a surgery is terrifying and scary, especially when she is not showing us any pain or discomfort, we feel it is the right thing to do to help her live the best life possible.
What is stopping us from stepping out in faith and seeing if God can perform another miracle for our little girl anyways? Who is to say that her brain won’t develop anymore once the fluid is gone?
Annalise has been such a fighter for her first 3 weeks of life anyways that we know that she will continue to be a fighter through brain surgery! Now- I may be a huge nervous wreck on that day but I know that God is right there with us and He will get us through it. He has been the one guiding us so far and He is the one who has been sustaining her. He always will be until the day He calls her home.
We are so blessed that we have already gotten 3 weeks with our Annalise and we have this hope that God will continue to let us have Annalise in our lives for a while yet.
With that said….prayers are appreciated in the next few weeks to come. Like I said earlier, her MRI is tomorrow. Next week we go in for pre-testing and then Monday, the 23rd is her surgery (that is the earliest they could get it in)!
We are so excited to see what the future holds for our special miracle! We know that it may be a long, tough road ahead of us but we know that with God, it will all be okay.
On a final note….
Because Annalise is still with us and we don’t know how long she will be, what complications she may have from the surgery, what disabilities she may end up with, etc., etc., we still have our GoFundMe site up and running (http://www.gofundme.com/hopeforannalise). This is mainly because we want to be able to stay home with her for as long as possible and give her the best life possible.
With all of that said… we are so incredibly blessed by all of the support we have been getting from y’all! We are so thankful for the thoughts, prayers, gifts, donations, and food that has been brought to us! We cannot even begin to explain how grateful we are!
We will continue to keep you updated on our sweet Annalise Hope!
We love y’all!